I'll be going down to Maryland again on Wednesday night to have the procedure done Thursday. I suspect my momma and I might end up staying a few days and depending on how I feel I might try to turn it into a mini-vacation for the weekend. I am not dreading it at all because I don't need to drink anything to clean out my system. I just have to refrain from food on Wednesday and use a few enemas come Thursday morning. And if you've ever had a colonoscopy, you might be able to relate to the ease with which I would rather stick a tube up my ass than drink any form of laxative.
I've also determined that steroids do nothing for me except ease my pain. Every time I am coming off of them or completely roid-free I've thought that my life is so miserable. Now that I've been back on them for a few weeks I still feel miserable but I am not nearly in as much pain. This is definitely a relief but it's frustrating that the steroids do nothing to ease the urgency and volume of crap still bypassing my ileostomy and coming out below. I guess as long as they are doing something, it is worth it.
Another thing I am going to have to deal with this week is that my doctor here has tried to contact me because my pharmacy called his office to inform him that I decided not to have Cimzia delivered. I haven't intentionally ignored his calls, but I haven't exactly been eager to call him back and talk to him. I am just not looking forward to the uncomfortableness of explaining that while I appreciate what he has done for me this past year, I am deciding to move on to someone else. But it is a conversation I must have and I would rather get it out of the way than have to dodge phone calls for the next few weeks. Awkward.
Hopefully next time I'll have more answers.