It's been a while...

Well I had my infusion yesterday in Maryland and all went well. I swear after I got my benadryl pre-meds, I closed my eyes for five minutes and it was done. Really, I don't know how it went so fast and how I slept through the entire thing. So much for being productive and reading during my infusion. I don't know why I always bring magazines and books when I know as soon as the drugs kick in I'm a sleepy mess.

Towards the end of my infusion there was a father and daughter who were each coming to get Remicade as well. It was very sad to me, as the younger girl was definitely still in her teens and seemed very ill. And I guess just sad to think that both of them make the trek to the hospital together every eight weeks to sit next to each other hooked up to an IV for 4 hours. But I guess if you have to go through something like that, might as well be with your family.

Anyway, I noticed how attentive and accommodating our infusion nurse was to the girl who was sick. She was very nauseous and in pain and they gave her meds to help with it while she was infused. And I couldn't help but get mad thinking at how sick I was and how I had to go through some of the worst pain in my life for a whole year without pain medicine. And I know how GI practices are with prescribing meds but I think my situation last year was pretty damn dire and I wonder if it would have been easier had I been with the doctor I am with now while I was going through it.

On a positive note, I am feeling better at 20 MG of prednisone. Really well actually. It is a relief similar to right after I got the first Remicade infusion again. This relief is something I haven't gotten with steroids alone. There must be something about the combination of steroids and Remicade that works. Hopefully now that I am at my two month mark of starting 6-MP, that will begin to kick in...

Not much else is going on. My birthday is Saturday and I will be celebrating at the Phillies game with my best friend and her fiance. And really, I'm quite happy to keep things low key. I hate to even make a big deal out of the day, but I've come to understand that you never know what is going to happen from year to year and you might as well celebrate things when you can.

Okay, that was a very boring update. Hopefully exciting things will be happening soon.

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