Tysabri Infusion #3

I just got home from my third Tysabri infusion. I must say it was quite an ordeal this time around. I was supposed to go on Wednesday but due to the weather they moved it to today and I'm pretty sure everyone else had their appointment moved to today as well. The thing with these infusions is that you don't want to wait any longer past your 28 days and understandably I wanted to get it in before the weekend. So while it took two hours before I was even registered, I'm glad I got it over with and was able to handle being at the hospital for five hours.

I think I'm going to be hyper-sensitive to my symptoms for the next couple of days and desperately searching for the slightest signs of improvement. I'm gonna keep doing my thing every day but hopefully things will be a lot easier and my mornings, which are typically the roughest, will start getting better.

As I've mentioned before, this infusion of Tysabri is do or die. If I don't see some improvement in the next couple of weeks then I won't be going for #4. I really haven't been able to get below 40 MG of steroids. At this point the steroids aren't doing much. I'm trying to think back to when I started taking them because I did profess that they were working. However, I don't know if I was simply content just to have some relief even if it was small or if they were actually doing more then. It's odd because sometimes I'm convinced I'm just taking a sugar pill because I don't really have the typical steroid side effects either. No crazy appetite, moon face, or mood swings. Maybe there's a conspiracy going on at my pharmacy from all the bitching I've done every time they've screwed my medicines up or didn't have things ready when they promised. Yea, let's just blame it on them.

Anyways, I'm looking forward to a low key Valentine's Day weekend. Nora, I wonder what Ryan is going to get us!?!?

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