I had my MRI last Tuesday and a doctors appointment right after. It was probably one of the worst days I've had health wise so being at the hospital for 5+ hours was torture. I was dehydrated, lightheaded, and short of breath the whole time. It was a rough day but I was glad I got everything done.
Not having the MRI results right away, I discussed treatment options with my doctor at the appointment. He basically gave me three options. Try another drug called Tysabri, add Methotrexate to my Humira treatment, or surgery. I linked those if you are actually interested in reading about them because it's hard to explain how they work.
I wrote Tysabri off in my head right away because of the ridiculous "rules" that must be followed on the drug and incidence of a deadly brain infection with long term use. Um, no thanks. At least not right now.
So ultimately I decided to add a weekly injection of Methotrexate in addition to my Humira injection. He has pretty much written off the possibility of Humira ever "working" but told me I can keep taking it, so I will. He was also pushing for me to go on steroids again. And while I am desperate for relief right now, I know steroids are not a long term solution. I think back to the absolutely horrible side effects of steroids and how bad it messed with me mentally when it was time to come off them. I don't think I could deal with it this time around.
A few days later the MRI results came in with good news that there was no abcess and therefore I would not need surgery. Awesome. But of course no good news comes without some bad. The bad news was that I had a couple more fistula tracks (tracts?) then they originally thought. But whatever, I'm already feeling what I'm feeling so that really didn't make a difference because it is not something they can treat. Fistulas heal when your body heals.
So with the addition of a couple of antibiotics I've been still feeling like crap even after my first Methotrexate injection. But my doctor says I won't feel relief for 8-10 weeks. Aren't these waiting games just wonderful?
I'm wearing my marathon tshirt today that says "13.1 miles Crossing the finish line for a cure". Ugh, if only it were that easy.
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